Impact of overload on primary caring mothers of children with severe cerebral palsy
Abstract
Introduction: children with severe cerebral palsy require special attention and care throughout their lives. The informal primary caregiver is in charge of permanently carrying out activities of daily living that the patient cannot perform.
Objective: to describe the impact of overload on mothers who are primary caregivers of children with severe cerebral palsy.
Methods: a cross-sectional descriptive study was carried out at the North University Polyclinic of Ciego de Ávila, from December 2016 to April 2018. It worked with the population of 37 primary caregiver mothers, to whom the Zarit interview questionnaire was applied. Three dimensions were analyzed: impact of care, interpersonal relationship, and self-efficacy expectations. Ethical principles were met.
Results: in the impact of care dimension, 97,30 % reported deterioration in their social life. Regarding interpersonal relationships, 97,30 % never wanted to delegate their tasks to other people. In the analysis of the self-efficacy expectation, it was evidenced that the majority (97,30 %) almost always lacked economic resources and sometimes had expectations of being unable to care for much longer. The measurement of the level of overload through the three dimensions resulted in 73 points for 100 % of the caregivers, which showed an intense overload.
Conclusions: caregiver mothers experience deterioration in their social life, they never want to delegate their tasks to other people, and most of them lack economic resources. This evidences the intense overload they experience in their livesDownloads
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